CIBMTR Data Management Guide
The Data Management Guide contains information on center participation and data submission to CIBMTR and serves as a resource for individuals seeking guidance about forms due, data quality, and the functions of CIBMTR research data processing.
We invite your feedback on individual sections and your suggestions on topics that you would like to see included. Feel free to contact CIBMTR Center Support with your feedback.
Manual Updates
Sections of the Data Management Guide are frequently updated. The most recent updates to the Guide can be found below. Go to the section and review the updated content.
| Date | Topic | Section | Description |
|---|---|---|---|
| 7/26/2024 | FormsNet3 Process and Tool Instructions | 2814: Indication for CIBMTR Data Reporting | Instructions moved to the Forms Instruction Manual |
| 5/29/2024 | Data Collection and Quality | Primary Disease and Disease Forms Due | Updated subsections to match F2402 R8 disease classifications |
| 1/19/2024 | Transplant Center Specific Analysis | International Information | Updated section to include information about eligibility requirements and application process |
| 8/31/2023 | Center Volume Data Reports | Multiple Sections | Updated and added sections to include information about timeline, datasets, status submission, and resources |
| 8/31/2023 | External Deliverables | Multiple Sections | Deleted and replaced with Center Volume Data Reports |
| 7/28/2023 | Protocols and Consent | Consent: Age of Majority | Updated and added sections to include information about reconsent pending status and updated instructions for entering a new consent for age of majority. |
| 7/28/2023 | Data Collection and Quality | Cellular Therapy | Updated multiple sections to include new TED vs CRF levels of reporting, consistent language, requirements, and information. |
| 3/31/2023 | Continuous Process Improvement Program (CPI) | Multiple Sections | Updated multiple sections for consistent language, requirements, timelines, and instructions. |
| 3/14/2023 | Continuous Process Improvement Program (CPI) | CPI Exemption Request | Updated requirements, timeline to submit requests, and CPI Exemption Request form |
| 3/10/2023 | Continuous Process Improvement Program (CPI) | Consecutive Transplant Audit | Updated instructions and requirements for steps 1, 2 (for both US and International centers), and 3 of the CTA process. Included additional sub-steps, visual aids, links to other resources, and how to solve discrepancies/queries |
| 1/27/2023 | Data Collection and Quality | NMDP Forms | Created new subpages with information on Adverse Event and Product Complaint Reporting and Genetic Mutation Reporting |
| 7/20/2022 | Primary Disease and Disease Forms Due | Non-Hodgkin Lymphoma | Updated the disease subtype options for Non-Hodgkin Lymphoma |
| 5/25/2022 | FormsNet3SM Process and Tool Instructions | Recipient Transfer Best Practices | Added Recipient Transfer Best Practices which contains answers to FAQs |
| 5/25/2022 | Data Collection and Quality | Cellular Therapy | Updated Cellular Therapy information and flow diagrams |
| 2/10/2022 | Multiple Topics | Multiple Sections | Review of sections to ensure consistent language and accurate links (e.g. CIBMTR Center Support) |
For more detailed instructions on completing CIBMTR forms, access the Forms Instruction Manual.
Last modified:
Aug 21, 2024