CIBMTR allows centers to review data, suggest changes, and submit publishing preference. CIBMTR will then close the Portal (to refresh the dataset) and allow the centers one last opportunity to view the refreshed data. Any corrections to data submitted through FormsNet3 can be made directly in the application. CIBMTR encourages centers to review the data with the medical director before submitting publishing preference.
There are four submission options available:
Data Complete/Correct – Publish ALL Data
Selecting this option indicates that center volume data from FormsNet3 are complete and accurate as displayed in the tables and data. Center agrees to have all data published on the HRSA website.
Data Complete/Correct – Publish ALLO Data and NOT AUTO Data
Choosing this option indicates that center volume data from FormsNet3 are complete and accurate as displayed in the tables. Center agrees to have “Allogeneic Transplant Volume Data and NOT Autologous Transplant Volume Data” published on the HRSA website. The disclaimer below will be used for the center on the HRSA website: “Autologous data are reported voluntarily and are not available for this center.”
Data Pending for Correction – Updates in Progress*
During the first round, this option may be chosen to indicate that the data are still being reviewed by the center, the center may need to make changes in FormsNet3, or the center has questions for CIBMTR regarding their dataset. Once updates are made in FormsNet3, the data will be refreshed for review during the second round. The center will need to submit center status again for the second round if this option is selected during the first round.
*This option is not available for Round 2
DO NOT PUBLISH Data for the Center
Selecting this options means the center does not agree to publish Transplant Center Volume Data. However, CIBMTR will review all center statuses and reserves the right to publish a center’s data even if this publishing preference is submitted.
- If the final decision is made to publish a centers data, it will be made available to the public and transplant community and the following statement will appear on the government website: “Although data were provided for transplants performed, the completeness of the reporting was not confirmed by the below centers before being included in this report. Allogeneic transplant data for these centers are made available for informational purposes for the SCTOD, as required by U.S. law.”
- If the final decision is made to not publish a centers data, it will not be made available to the public and transplant community and the following statement will appear on the government website: “Although these centers performed transplants, their data could not be included in the U.S. Transplant Data by Center Report. Most of these centers did not provide data within the timeframe needed for this report. A few centers did provide data, but their data could not be validated in time for this report.”
- If centers do not submit a final data status (“Data Pending” is not considered a final status), the default setting is to publish all the center’s information. Centers that report allogeneic HCT will have this data published at a minimum.