FormsNet3 Consent Tool

Recipient consent for the CIBMTR research database (ClinicalTrials.gov Identifier: NCT01166009) is collected in the Consent Tool within FormsNet3. The Consent Tool allows recipient consent status and contact information to be collected as soon as possible after the CRID is created. It also enables the CIBMTR Survey Research Group (SRG) to approach patients prior to their infusion to conduct patient-reported outcomes (PRO) surveys.

!Consent Status and Baseline Forms
If a consent status has not yet been reported for a recipient, the edit form icon for the Pre-Transplant Essential Data (2400), Pre-Transplant Essential Data Disease Classification (2402) and Pre-Cellular Therapy Essential Data (4000) forms will appear disabled (see Figure 1 below). When the user hovers over the icon, it will display that consent has not yet been reported for that recipient (see Figure 2 below). The user should go to the Consent Tool (see Navigation to the Consent Tool) and document the recipient’s consent status in order to enable the edit icon and allow for completion of the form.

Figure 1. Disabled Edit Form Icon

Figure 2. Hovered Text, Consent Not Yet Reported

Links to Sections of the Consent Tool Instructions:
Navigation to the Consent Tool
Consent Tool Grids
Adding and Updating Consent
Q1-10: Consent Information

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CIBMTR® (Center for International Blood and Marrow Transplant Research) is a research collaboration between the Medical College of Wisconsin and NMDP.