Q77-85: Other Symptoms

*Priapism: Questions 77 – 78 are applicable to only biologically male recipients.

Question 77: Did one or more episodes of priapism occur? (to be answered for males only)

Priapism is defined as prolonged erection of the penis, usually without sexual arousal.

Report Yes if the recipient experienced one or more episodes of priapism (with or without treatment) at any time between diagnosis and the start of the preparative regimen. If the recipient did not experience priapism or no information is available to determine if the recipient experienced priapism, report No or Unknown, respectively and go to question 79.

Question 78: Was surgery performed at any time to correct blood flow?

If the recipient experienced an episode(s) of priapism, indicate if surgery was required at any time to correct the blood flow. Report Yes if surgery was performed at any between diagnosis and the start of the preparative regimen / infusion to correct blood flow. If surgery was not performed or if no information is available to determine if surgery was performed to correct blood flow as a result of priapism, report No or Unknown, respectively.

Question 79: Has sickle cell retinopathy developed?

Sickle cell retinopathy is an ocular manifestation of sickle cell disorders characterized by ocular damage due to trapping of sickle-shaped cells in the small blood vessels of the eye. Diagnosis of sickle cell retinopathy should be made by an ophthalmologist and is typically documented within the recipient’s medical record.

Indicate Yes if the recipient developed sickle cell retinopathy at any time between diagnosis and the start of the preparative regimen / infusion. Report No if there is no evidence of sickle cell retinopathy. The Unknown option should be selected sparingly and only when no information is available to determine if sickle cell retinopathy was diagnosed.

Question 80: Have chronic leg ulcers developed?

Chronic leg ulcers are defined as a defect of the skin below the level of the knee persisting for more than six weeks with no tendency to heal after three or more months.

Indicate whether the recipient developed chronic leg ulcers at any time between diagnosis and the start of the preparative regimen / infusion. If chronic leg ulcers developed, report Yes. If chronic leg ulcers did not develop or if no information is available to determine if chronic leg ulcers developed, report No or Unknown, respectively.

Question 81: Is there a diagnosis of asthma or a reactive airway disease?

Asthma is a condition where the airways narrow, swell, and produce extra mucus which results in breathing difficulty, coughing, wheezing, and shortness of breath. Reactive airway disease (RAD) is a general term used to describe coughing, wheezing or shortness of breath when a specific diagnosis has not been made (i.e., asthma, chronic obstructive pulmonary disease, etc.).

Indicate if there was a diagnosis of asthma or a reactive airway disease prior to the start of the preparative regimen / infusion. If the recipient has a diagnosis of asthma or a reactive airway disease, report Yes. If the recipient was not diagnosed with or if no information is available to determine if there was a diagnosis of asthma or reactive airway disease, report No or Unknown, respectively.

Questions 82: Has a venous thrombosis embolism developed?

Venous thrombosis embolism, also called a venous thromboembolism, is a condition characterized by formation of blood clots in deep veins of the body. These clots typically manifest in the lower leg, thigh, or pelvis, but have been noted to occur in the arm.

Indicate if the recipient developed a venous thrombosis embolism prior to the start of the preparative regimen / infusion. If a venous thrombosis embolism developed, report Yes continue with question 83. If a venous thrombosis embolism did not develop or if no information is available to determine if a venous thrombosis embolism developed, select No or Unknown, respectively and go to question 84.

Question 83: Was it associated with an indwelling (central line) catheter?

There are several types of long term indwelling central line catheters used to access veins. Examples include Hickman, Broviac, PICC, etc. which carry a risk of developing a blood clot.

Indicate Yes or No if the venous thrombosis embolism was associated with the recipient’s indwelling (central line) catheter.

Questions 84: Has a pulmonary embolism developed?

Pulmonary embolism is a medical condition where a blood clot is lodged in an artery of the lung, blocking blood flow to that area.

Indicate if the recipient developed a pulmonary embolism between diagnosis and the start of the preparative regimen / infusion. If a pulmonary embolism developed, report Yes and continue with question 85. If a pulmonary embolism did not develop or if no information is available to determine if a pulmonary embolism developed, select No or Unknown, respectively and go to question 86.

Question 85: Was it associated with an indwelling catheter?

There are several types of long term indwelling central line catheters used to access veins. Examples include Hickman, Broviac, PICC, etc. which carry a risk of developing a blood clot.

Indicate Yes or No if the pulmonary embolism was associated with the recipient’s indwelling (central line) catheter.

Section Updates:

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