The Recipient Death Data (2900) captures cause of death data fields for all recipients. The leading cause of post-infusion mortality is persistent, recurrent, or relapsed primary disease. Other common causes of death include graft-versus-host disease, infection, and organ failure. As hematopoietic cell transplant and cellular therapy evolves, reporting accurate cause of death data is important to investigating the variables that are associated with post-infusion outcomes.

If Dead is reported as the current survival status at the date of last contact on the Post-TED (2450), Post-Infusion Follow-Up (2100) or Cellular Therapy Essential Data Follow-Up (4100) form at the 100-day, six month, and yearly time points, complete the Recipient Death Data (2900) as soon as possible after the recipient has died.

Lost to Follow-Up

Occasionally, centers may lose contact with recipients for a variety of reasons, including the recipient’s moving, changing physicians, or death. After attempts to contact the recipient or referring physician have failed, the recipient may be declared lost to follow-up. If your center later receives documentation that a recipient is dead, report this on the appropriate follow-up form for the time period in which the recipient died. This may require resetting a form that was previously made Lost to Follow Up (LTF) or Survival (SUR). This may happen when a center becomes aware of the death after it has reported that the recipient is lost to follow-up. To reset the form, click the blue counterclockwise arrow icon.

Links to Sections of Form
Cause of Death Options
Q1 – 4: Recipient Death
Q5 – 6: Contributing Cause of Death

Manual Updates
Sections of the Forms Instruction Manual are frequently updated. The most recent updates to the manual can be found below. For additional information, select the manual section and review the updated text.

To reference the historical Manual Change History for this form, please reference the retired manual section on the Retired Forms Manuals webpage.

Date Manual Section Add/Remove/Modify Description
10/24/2025 2900: Recipient Death Modify Version 5 of the 2900: Recipient Death section of the Forms Instructions Manual released. Version 5 corresponds to revision 6 of the Form 2900.
Last modified: Oct 27, 2025

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