Question 71: New onset of acute chest syndrome
Acute chest syndrome (ACS) is a term used to identify symptoms of chest pain, cough, fever, decreased oxygen (hypoxia), and lung infiltrates. Due to the sickling nature of red blood cells as a result of sickle cell disease, ACS may result in pulmonary infarction / emboli or viral / bacterial pneumonia. Diagnoses should be made based on clinical judgement.
Report Yes in the following scenarios:
- There was a new onset of ACS since the date of last report.
- ACS was diagnosed prior to HCT or in a prior reporting period, resolved, and developed in the current reporting period.
Report No in the following scenarios:
- There was not a new onset of ACS since the date of last report.
- ACS was diagnosed in a prior reporting period and persisted into the current reporting period.
If documentation is not clear or is unavailable to determine if ACS was present, report Unknown.
Question 72: Number of events
Specify the number of events that occurred in this reporting period. An ‘event’ is defined as having clinical symptoms requiring intervention (i.e., antibiotics, steroids, etc.) followed by resolution of symptoms and discontinuation of intervention. This should not be interpreted as the number of days the recipient was receiving treatment or had active symptoms. An event may also be referred to as an ‘episode.’
Question 73: Date of last event
Report the date of the last acute chest syndrome event requiring hospitalization or treatment in the current reporting period.
Question 74: Did any events require hospitalization?
Indicate if any of the acute chest syndrome events that occurred in this reporting period required hospitalization. Acute chest syndrome must be the primary indication for hospitalization.
Section Updates:
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