CIBMTR.org

Research on Collecting Self-Reported REA Information

The following articles were referenced in CIBMTR’s creation of F2807 and collecting race, ethnicity and ancestry information:

  1. Damotte V, Zhao C, Lin C, et al. Multiple measures for self-identification improve matching donors with patients in unrelated hematopoietic stem cell transplant. Commun Med (Lond). 2024;4(1):189. Published 2024 Oct 3. doi:10.1038/s43856-024-00620-w
  2. Dehn, J., et al., HapLogic: A Predictive Human Leukocyte Antigen-Matching Algorithm to Enhance Rapid Identification of the Optimal Unrelated Hematopoietic Stem Cell Sources for Transplantation. Biol Blood Marrow Transplant, 2016. 22(11): p. 2038-2046.
  3. Gragert, L., et al., Six-locus high resolution HLA haplotype frequencies derived from mixed-resolution DNA typing for the entire US donor registry. Hum Immunol, 2013. 74(10): p. 1313-20.
  4. Gragert, L., et al., Unrelated Stem Cell Donor HLA Match Likelihood in the US Registry Incorporating HLA-DPB1 Permissive Mismatching. Transplant Cell Ther, 2023. 29(4): p. 244-252.
  5. Klitz W, Gragert L, Maiers M, et al. Genetic differentiation of Jewish populations. Tissue Antigens. 2010;76(6):442-458. doi:10.1111/j.1399-0039.2010.01549.x
  6. Lu, C., et al., Use of race, ethnicity, and ancestry data in health research. PLOS Glob Public Health, 2022. 2(9): p. e0001060.
  7. Luisa N. Borrell, D.D.S., Ph.D.,Jennifer R. Elhawary, M.S.,Elena Fuentes Afflick, M.D., M.P.H.,Jonathan Witonsky, M.D., Nirav Bhakta, M.D., Ph.D., Alan H.B. Wu, Ph.D.,Kirsten Bibbins Domingo, Ph.D., M.D., José R. Rodr.guez Santana, M.D.,Michael A. Lenoir, M.D., James R. Gavin III, M.D., Ph.D., Rick A. Kittles, Ph.D.,Noah A. Zaitlen, Ph.D., David S. Wilkes, M.D., Neil R. Powe, M.D., M.P.H., M.B.A.,Elad Ziv, M.D., and M.D. Esteban G. Burchard, M.P.H.*, Race and Genetic Ancestry in Medicine — A Time for Reckoning with Racism New England Journal of Medicine, 2021. 384(5): p. 474-480.
  8. Madbouly, A. and Y.T. Bolon, Race, ethnicity, ancestry, and aspects that impact HLA data and matching for transplant. Front Genet, 2024. 15: p. 1375352.
  9. Madbouly, A., et al., Validation of statistical imputation of allele-level multilocus phased genotypes from ambiguous HLA assignments. Tissue Antigens, 2014. 84(3): p. 285-92.
  10. Manor S, Halagan M, Shriki N, et al. High-resolution HLA A∼B∼DRB1 haplotype frequencies from the Ezer Mizion Bone Marrow Donor Registry in Israel. Hum Immunol. 2016;77(12):1114-1119. doi:10.1016/j.humimm.2016.09.004
Last modified: Oct 27, 2025