European Society for Blood and Marrow Transplantation (EBMT) Centers
EBMT centers have a different process for reporting data to CIBMTR than U.S. centers, and other international centers. Prior to the implementation of FormsNet in December 2007, EBMT centers electronically forwarded MED‐A data (comparable to TED‐form data) to CIBMTR from centers that had given their permission. When the FormsNet application was implemented, CIBMTR was not able to receive electronic transfer of MED‐A data. As a result, MED‐A level data appear on the CIBMTR Forms Due report as TED forms being “overdue,” even though a center may have submitted these data to EBMT. Those “overdue” forms listed on the report can be ignored. CIBMTR is working with EBMT to electronically transfer “overdue” data.
At CIBMTR, we understand that the current Forms Due Report is not optimal for EBMT centers, and apologize for this inconvenience. We appreciate your patience as we work to complete implementation of electronic data transmission between the EBMT and CIBMTR databases. Feel free to contact your CIBMTR Center CRC if you have additional questions about the Forms Due reports.
CIBMTR is currently working with EBMT on electronic data transfer. The EBMT can now successfully submit the following forms to the CIBMTR via AGNIS:
• Form 2400 Pre‐TED
• Form 2450 Post‐TED
• Form 2804 CIBMTR Research ID (CRID) Assignment
• Form 2814 Indication for CRID Assignment
• Form 2006 Hematopoietic Stem Cell Transplant (HCT) Infusion
All other forms are CRFs, and should be submitted directly to CIBMTR in FormsNet3. Examples of CRF forms include:
• Form 2000 Baseline
• Form 2100 Post-HCT Data
• Disease specific inserts
• Form 2900 Recipient Death Data
See: Data Collection Forms
At this time, there is not an “electronic pathway” for CRF form data to be transferred from EBMT to CIBMTR. Therefore, CIBMTR plans to continue to request follow‐up wherever possible for patients on the CRF track. Follow‐up for these patients can be submitted to CIBMTR via FormsNet. These patients also appear on Forms Due reports, and CIBMTR would like centers to respond to requests for follow‐up CRF data.